NCIMI joins UK Health Data Research Alliance

Three new members have joined the UK Health Data Research Alliance, a consortium of leading health data custodians and research organisations, working to support the acceleration in the use of health data to improve health and care across the country.

Thirty-three organisations in total have now joined the Alliance in just 18 months since its launch in early 2019, collaborating to promote the responsible use of health data for research and innovation to improves patients’ lives.

UK Health Data Research Alliance

The UK Health Data Research Alliance is an independent collective of health data controllers and acts as an unincorporated, not-for-profit and cost neutral association. The Alliance encourages widespread access and use of health data to advance human health

Welcoming the newest Alliance members, David Seymour, Partnerships Director at Health Data Research UK, said: “The expansion of the Alliance is tremendous news and we welcome our new colleagues in NIHR, NCIMI and Generation Scotland.

“The Alliance is all about collaboration and combining our knowledge and data to make new breakthroughs. Every new member brings yet more expertise and insight to the Alliance through their important datasets and will prove invaluable in helping researchers to improve health and care across the UK.”

NIHR

Also joining the Alliance is NIHR Clinical Research Network (NIHR CRN) supports patients, the public and health and care organisations across England to participate in high-quality research, advancing knowledge and improving care. The CRN is comprised of 15 Local Clinical Research Networks and 30 specialities, who coordinate and support the delivery of high-quality research both by geography and therapy area, bringing a wealth of expertise and a wide variety of data to the Alliance. NIHR is the country’s largest funder of health and care research, providing the people, facilities and technology that enables research to thrive.

Generation Scotland

Generation Scotland, the third newcomer, brings a resource of human biological samples and data which is available for medical research to the Alliance. Generation Scotland aims to create more effective treatments based on gene knowledge for the medical, social and economic benefit of Scotland and its people. They operate through a unique partnership with the Scottish University Medical Schools, the NHS and the people of Scotland.