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All Party Parliamentary Group on Endometriosis

February 24, 2022

In October 2020 there was an All Party Parliamentary Group on Endometriosis which was led by Sir David Amess.

All-Party Parliamentary Groups (APPGs) are informal cross-party groups. They have no official status within Parliament but can, however, be very influential in bringing matters to the attention of parliament and ministers, and encouraging action by other bodies. They are run by and for Members of the Commons and Lords, though many choose to involve individuals and organisations from outside Parliament in their administration and activities.

The key recommendations of the report

A commitment to drive down diagnosis times

The APPG is seeking a commitment from Governments in all four nations to reduce average diagnosis times with targets of 4 years or less by 2025, and a year or less by 2030.

Ensure access to appropriate care

1. There are no NHS care pathways for endometriosis outside the pelvic cavity, despite it affecting up to 10% of those with endometriosis.
2. In terms of the diversity of patients, APPG recognises the additional complexities and barriers that those from black, Asian and minority ethnic communities may face in talking about menstrual health and accessing support, and is committed to addressing health inequalities.

Awareness

Too many think the sometimes debilitating pain and symptoms they are experiencing is ‘normal’ and they have to live with it. The APPG would like to see Menstrual Wellbeing included as compulsory in the school curriculums across the UK.

Investment in research

To improve options for diagnosis, care and support, and to enable those with the disease to best manage living with endometriosis, the APPG is seeking commitment for vital investment in research into the cause of endometriosis, treatment and management options, and diagnosis.

All Party Parliamentary report